Use the hashtag #MyKidneysMyLife with all your social media activity during 2019-20 to help us build awareness around the hashtag, and track responses and outreach to government officials. Find your legislator’s social media account information here.
For some basic tips, watch Kidney Advocacy Committee (KAC) liaison Rahmeka Cox’s video:
The following are four actionable items we’ll be asking the lawmakers for. Use these message points in your social media activity.
Prohibit discrimination in the availability, coverage limit, or price of life, disability or long-term care insurance for living donors and add living donation to the Family and Medical Leave Act (FMLA).
Extending Medicare coverage for Immunosuppressive Medication:
Transplant recipients need these drugs to maintain their kidney and lower risk of rejection. Medicare covers immunosuppressants for only 36 months post-transplant, leaving many recipients struggling to find affordable coverage. Extending Medicare coverage for immunosuppressive medications indefinitely ensures patients have access to these lifesaving medications.
Increase funding in Fiscal Year 2020 for: CDC’s Division of Diabetes Translation’s (DDT) CKD Surveillance Project; the Health Resources and Services
Administration’s (HRSA) Division of Transplantation and Bureau of Primary Care; the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK); and KidneyX, the Kidney Innovation Accelerator.
1. Take a photo of yourself holding a sign that answers the following question: How did kidney disease affect/change your life? (Example: “I have been waiting 5 years for a lifesaving kidney transplant.”)
2. Tweet the photo at your legislator using the hashtag #MyKidneysMyLife and tie it to one of the below statistics:
Or use a state-specific state from the fact sheets on our web site:
3. Or use these the following additional tweets:
We encourage you to take videos with your smartphone when participating in district or advocacy events. Please load your videos on Youtube, share them with your legislators on social media and email a link of the video to Andrew.Fullerton@kidney.org.
Keep your message short and simple. Here are some sample questions and comments you can answer in your videos:
We encourage you to take photos with your smartphone when participating in district and advocacy events.
Keep your message short and simple. Some suggestions:
See #mykidneysmylife on Twitter to see what others have done!