DID YOU KNOW?
30 million Americans have chronic kidney disease, but 90% are unaware
Chronic kidney disease is the 9th leading cause of death in the U.S. and growing
Almost 10,000 children and adolescents have kidney failure or end-stage renal disease and are 30 times more likely to die than healthy children
The two main causes of chronic kidney disease are diabetes and high blood pressure, responsible for two-thirds of all cases.
1 in 3 American adults is at risk for kidney disease
Patients need immediate increased options to train for home dialysis. While many dialysis facilities are putting in place extra measures and precautions to treat patients safely in their clinics, they deserve the option to dialyze at home. Take action now to ensure your Members of Congress understand that it’s a priority to give patients the option to treat at home.
The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (S. 3353/H.R. 5534) will extend Medicare coverage of immunosuppressive drugs for the life of a kidney transplant, beyond the 36-month post-transplant cut-off currently in place covering these lifesaving medications.
The Living Donor Protection Act will protect living organ donors and remove barriers to donation by prohibiting insurance companies from denying or limiting life, disability and long term care insurance to living donors, and from charging higher premiums. It will also help to protect the jobs of living donors while they recover from donation.
The Patient-Centered Outcomes Research Institute (PCORI) provides patients and caregivers with information needed to make decisions about the treatment or other care options best for them. To date, PCORI has supported 19 kidney-specific studies that are already helping patients and caregivers. Unless Congress acts to reauthorize PCORI, this meaningful research will cease at the end of 2019
Tell Congress to Act to Fund Kidney Disease Research and Programs! The latest data coming from CDC’s Chronic Kidney Disease Surveillance Project shows the number of Americans with CKD is higher than previously estimated. There is action Congress can take to support funding for research and programs that generate awareness and promote improved access to treatment for CKD.
To keep our momentum in Washington, D.C. and your state capitals, we need to share your stories. When we are asked, “Are there examples of a living kidney donor being discriminated against in…” or “Tell me about constituents whose lives would have been changed by earlier detection of kidney disease…” we want to share your story with them.
Have end-stage renal disease (ESRD)
Americans on the Kidney Transplant Waitlist
People with ESRD who died in 2014