The National Kidney Foundation (NKF) is the largest, most comprehensive and longstanding, patient centric organization dedicated to the awareness, prevention and treatment of kidney disease in the US. Together, we can enhance the lives of kidney patients by making our voices heard in support of the issues affecting funding, treatment, research and more. Join the effort today.
Hear Our Mission In Your Advocates Own Words
Listen to our Kidney Advocacy Committee patients and other supporters talk about why they have raised their voices for kidney patients across the country. You can also hear more about the Annual Kidney Patient Summit from our advocates.
DID YOU KNOW?
Use Your Voice to Help Kidney Disease Patients
Patients need immediate increased options to train for home dialysis. While many dialysis facilities are putting in place extra measures and precautions to treat patients safely in their clinics, they deserve the option to dialyze at home. Take action now to ensure your Members of Congress understand that it’s a priority to give patients the option to treat at home.
The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (S. 3353/H.R. 5534) will extend Medicare coverage of immunosuppressive drugs for the life of a kidney transplant, beyond the 36-month post-transplant cut-off currently in place covering these lifesaving medications.
The Living Donor Protection Act will protect living organ donors and remove barriers to donation by prohibiting insurance companies from denying or limiting life, disability and long term care insurance to living donors, and from charging higher premiums. It will also help to protect the jobs of living donors while they recover from donation.
The Patient-Centered Outcomes Research Institute (PCORI) provides patients and caregivers with information needed to make decisions about the treatment or other care options best for them. To date, PCORI has supported 19 kidney-specific studies that are already helping patients and caregivers. Unless Congress acts to reauthorize PCORI, this meaningful research will cease at the end of 2019
Tell Congress to Act to Fund Kidney Disease Research and Programs! The latest data coming from CDC’s Chronic Kidney Disease Surveillance Project shows the number of Americans with CKD is higher than previously estimated. There is action Congress can take to support funding for research and programs that generate awareness and promote improved access to treatment for CKD.
To keep our momentum in Washington, D.C. and your state capitals, we need to share your stories. When we are asked, “Are there examples of a living kidney donor being discriminated against in…” or “Tell me about constituents whose lives would have been changed by earlier detection of kidney disease…” we want to share your story with them.
678383
Have end-stage renal disease (ESRD)
96932
Americans on the Kidney Transplant Waitlist
95254
People with ESRD who died in 2014
