Tell Congress to Act to Fund Kidney Disease Research and Programs! The latest data coming from CDC’s Chronic Kidney Disease Surveillance Project shows the number of Americans with CKD is higher than previously estimated. There is action Congress can take to support funding for research and programs that generate awareness and promote improved access to treatment for CKD.
The Living Donor Protection Act will protect living organ donors and remove barriers to donation by prohibiting insurance companies from denying or limiting life, disability and long term care insurance to living donors, and from charging higher premiums. It will also help to protect the jobs of living donors while they recover from donation.
The budget that Governor Wolf presented for FY2017-2018 includes a reduction of more than 80% for the state Chronic Renal Disease Program (CRDP). Please make your voice heard to protect this important program!
Tell your lawmakers what it would mean to you if you had to miss dialysis, or couldn’t afford your needed medications.
On March 7th, 150 advocates for the National Kidney Foundation, Alport Syndrome Foundation, American Association of Kidney Patients, Home Dialyzors United, Nephcure Kidney International, and Polycystic Kidney Disease Foundation will meet with their Representatives and Senators in Washington, DC to bring chronic kidney disease (CKD) to the forefront of health care policy discussion.
Congress is likely to repeal the Affordable Care Act (ACA) very soon. The law guarantees that people with chronic conditions have access to affordable health insurance and Congress could take this away. Ask them to ensure that there is a replacement to the ACA before they repeal the existing law that protects and helps people with chronic conditions access and better afford health insurance.
The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act will help provide a safety net for kidney patients who lack health coverage for the immunosuppressive medications required to help maintain their transplant.
Tell your story and urge your U.S. Representative and Senators to reintroduce and sponsor the Living Donor Protection Act, provide lifetime access for immunosuppressive medications through Medicare, and create a demonstration program to improve early detection and management of chronic kidney disease (CKD).
Have end-stage renal disease (ESRD)
Americans on the Transplant Waitlist
People with ESRD who died in 2014