#MyKidneysMyLife:

Meet Three Of Our “Advocates Creating Change”

On September 15th and 16th, 2020, advocates from kidney organizations around the country attended the virtual 7th Annual Kidney Patient Summit, organized and led by the National Kidney Foundation. These “Advocates Creating Change” educated Members of Congress and their staff about the importance of protecting living organ donors, extending Medicare coverage of immunosuppressive medications for kidney transplant recipients and increasing support for kidney research and programs. Meet three of our advocates who represent our patient community.

Click here for information about our advocates.

DORIS LEW

Doris is a wife, a mother of two teenage boys and a transplant recipient. She educates others about the importance of getting their kidneys checked, advocating for themselves and maintaining a healthy lifestyle.

IRA POTTER

Ira donated a kidney to his wife and has been a member of the advisory board of the NKF in Missouri since 2015. After donating, he was initially denied life insurance and later, once a policy was finally approved, he was charged outrageous rates all because he was an organ donor.  Hear his story.

BOBBIE REED

Bobbie Reed is on a mission for her son Alex, who developed kidney disease after graduating from college. Alex was fortunate to receive a non-directed kidney donation, but struggles to afford the medications he needs to maintain his lifesaving kidney.  Hear their story.

Learn About Events At This Year’s Summit

NKF’s Richard K. Salick Advocacy Award 

Each year, the National Kidney Foundation presents the Richard K. Salick Advocacy Award to an outstanding kidney patient advocate. This prestigious award is given to an individual who embodies the spirit of NKF’s dear friend and former colleague, Rich Salick, a former pro-surfer who underwent three kidney transplants and faced cancer, but still put the needs of other kidney patients ahead of his own.

Congratulations to Jason Nothdurft, a living kidney donor, for being awarded this year!  His work has been integral to NKF’s advocacy efforts in both New Jersey and nationally!

Virtual Congressional Briefing: Kidney Health in the Hispanic Community: Are You the 33%? 

Did you know that Hispanic or Latino people are more than twice as likely as non-Hispanics or Latinos to develop kidney disease? Watch the video from the Virtual Congressional Briefing on Kidney Health in the Hispanic Community: Are You the 33%?

 

Watch actor, activist, and entrepreneur Wilmer Valderrama kick off NKF’s “Are You the 33%?” Kidney Risk Campaign, a public awareness campaign designed to reach the 1 in 3 American adults at risk for kidney disease. Wilmer was joined by leading physicians and patient advocates to discuss kidney disease in the Hispanic or Latino communities and how the “Are You the 33%?” Kidney Risk Campaign aims to reach those Americans most at risk.  Click here to watch!

Advocacy and Training Materials

The 2019 Kidney Patient Summit in Photos

Click to see the website for 2019’s 6th Annual Kidney Patient Summit.

Join the Conversation on Social Media with #MyKidneysMyLife

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Follow live Summit coverage on the NKF Advocacy Action Blog.

Thank you to our partner organizations

Thank you to our generous sponsors: