#MyKidneysMyLife:

Meet Three Of Our “Advocates Creating Change”

On March 16th and 17th, 2020, approximately 125 advocates from kidney organizations around the country will attend the 7th Annual Kidney Patient Summit, organized and led by the National Kidney Foundation. These “Advocates Creating Change” will educate Members of Congress and their staff about the importance of protecting living organ donors, extending Medicare coverage of immunosuppressive medications for kidney transplant recipients and increasing support for kidney research and programs. Meet three of our advocates from this year’s Kidney Patient Summit.

Click here for information about our advocates.

DORIS LEW

Doris is a wife, a mother of two teenage boys and a transplant recipient. She educates others about the importance of getting their kidneys checked, advocating for themselves and maintaining a healthy lifestyle.

IRA POTTER

Ira donated a kidney to his wife and has been a member of the advisory board of the NKF in Missouri since 2015. After donating, he was initially denied life insurance and later, once a policy was finally approved, he was charged outrageous rates all because he was an organ donor.  Hear his story.

BOBBIE REED

Bobbie Reed is on a mission for her son Alex, who developed kidney disease after graduating from college. Alex was fortunate to receive a non-directed kidney donation, but struggles to afford the medications he needs to maintain his lifesaving kidney.  Hear their story.

Don’t Miss Events At This Year’s Summit

Congressional Briefing: Investing in America’s Kidney Health

Join the kidney community at this Congressional briefing to learn more about the burden of kidney disease, the importance of federal investments in the diagnosis, prevention, and treatment of kidney disease, and about an exciting new effort to increase awareness about this public health crisis.

 

The briefing has been postponed.

CMS To Present On Kidney Initiatives

The Centers for Medicare and Medicaid Services (CMS) will be giving a presentation titled, “Empowering Patients and Partners to Increase Kidney Transplantation,” to advocates at the 7th Annual Kidney Patient Summit and seeking their feedback about kidney donation initiatives being drafted.

NKF’s Richard K. Salick Advocacy Award 

Each year, the National Kidney Foundation presents the Richard K. Salick Advocacy Award to an outstanding kidney patient advocate. This prestigious award is given to an individual who embodies the spirit of NKF’s dear friend and former colleague, Rich Salick, a former pro-surfer who underwent three kidney transplants and faced cancer, but still put the needs of other kidney patients ahead of his own.

World Kidney Day Congressional Reception

The World Kidney Day Congressional Reception will be held on March 11th to kick off World Kidney Day and the Kidney Patient Summit the following week.  NKF will be presenting awards to two members of Congress to recognize their outstanding support of NKF and the kidney community.

 

More information on 2020’s World Kidney Day Congressional Reception will be available shortly.

Advocacy and Training Materials

The 2019 Kidney Patient Summit in Photos

Click to see the website for 2019’s 6th Annual Kidney Patient Summit.

Join the Conversation on Social Media with #MyKidneysMyLife

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Follow live Summit coverage on the NKF Advocacy Action Blog.

Thank you to our partner organizations

Thank you to our generous sponsors: