Inspiring Action for Kidney Disease

#MyKidneysMyLife:

Meet Our Advocates

On March 4th and 5th, 2019, more than 100 advocates from kidney organizations around the country will converge on Capitol Hill to “Inspire Change for Kidney Disease,” meet with lawmakers and put a human face on kidney disease during the 6th Annual Kidney Patient Summit, organized by the National Kidney Foundation. Participants are united by a mission to educate Congress about the importance of living organ donation, the importance of immunosuppressant medication coverage for transplant patients and support for CKD research and programs. Meet three of our advocates from 2019’s 6th Annual Kidney Patient Summit.  Click here for further information on advocates.

Andrea Cox

A retired teacher of 32 years, Andrea was diagnosed with ESRD in 2004.  A mother, wife and caregiver to an ill parent, she was on dialysis for two years until her son, David, donated a kidney in 2006.

Erich Ditschman

When Erich received his kidney disease diagnosis in high school, he didn’t let it stop him from living his life to the fullest!  A recipient of two kidneys transplants, one from his wife Andria.

Melissa Bensouda

After nearly a decade on dialysis, Melissa received her call for a kidney transplant in 2012.  Last year, she was forced to resume dialysis when her transplant was rejected.  She undergoes dialysis while maintaining a full time job and as a mother of three!

Don’t Miss Events At This Year’s Summit

Listen to HHS Secretary Azar’s Comments on Transforming Kidney
Care

The Secretary of the United States Department of Health and Human Services Alex M. Azar II (pictured, left, with CEO Kevin Longino) announced his vision for kidney care at the 6th Annual Kidney Patient Summit, led by NKF.  Secretary Azar announced what the U.S. Department of Health and Human Services is doing to improve outcomes for kidney patients. To read the full press release, watch the video of HHS Secretary Azar’s speech at the Summit, or read a transcript of the speech, click here.

World Kidney Day Congressional Reception

The World Kidney Day Congressional Reception, with special guest Angelica Hale, will be held in conjunction with the 6th Annual Kidney Patient Summit and as a kick-off to World Kidney Day. Kidney patient advocates will be honoring two congressional champions’ of kidney patients, Rep. Ron Kind (D-WI) and Rep. Bill Posey (R-FL).

Click here for more information on 2019’s World Kidney Day Congressional Reception.

NKF’s Richard K. Salick Advocacy Award 

During this year’s Summit, we awarded our 2019 Richard K. Salick Advocacy Awardee, Jim Myers. This prestigious award is presented an individual who embodies the spirit of NKF’s dear friend, Rich Salick, a former pro surfer who underwent three kidney transplants, faced cancer, but still put the needs of other kidney patients ahead of his own.

Jim is a leader among NKF’s Kidney Advocacy Committee and a tenacious advocate for kidney patients across the country.  Jim works tirelessly to educate lawmakers about kidney disease, legislative priorities, and to help empower fellow kidney patients to make a difference in their lives.

Advocacy and Training Materials

2018 Summit in Photos

Click to see the website for 2018’s 4th Annual Kidney Patient Summit.

Join the Conversation: #MyKidneysMyLife

Follow live Summit coverage on the NKF Advocacy Action Blog.

Thank you to our partner organizations

Thank you to our generous sponsor: