On March 5 and 6, nearly 100 advocates from five kidney organizations around the country converged on Capitol Hill to “Inspire Change for Kidney Disease,” meet with lawmakers and put a human face on kidney disease during the 5th Annual Kidney Patient Summit, organized by the National Kidney Foundation. Participants were united by a mission to educate Congress about the importance of early detection and treatment of chronic kidney disease (CKD), living organ donation, and supporting CKD research and programs. Meet three of our advocates.
Curtis was diagnosed in 2013 with FSGS and received the “gift of life”– a transplant from his daughter’s college sorority sister – in 2016. Curtis has become very passionate in advocating CKD awareness and organ donation with NKF and the Indiana Donor Network.
Meet some of our advocates inspiring action for chronic kidney disease.
Mary was diagnosed with CKD at the age of nine, and has since received dialysis and four kidney transplants. She serves on the NKF Kidney Advocacy Committee, as well as UNOS’ Patient Affairs Committee. She’s also an author of a book that helps pediatric patients learn more about CKD.
Cynthia received her diagnosis at 15, went on dialysis at 19, and has received two kidney transplants since then. A healthcare practitioner, she understands the impact of CKD from both the patient and provider points of view, serving as a patient mentor to help others cope with their diagnosis.
Watch Angelica Hale, NKF’s Kid Ambassador and kidney transplant recipient, lead a Facebook Live Q&A on chronic kidney disease like a seasoned journalist with Congressman Bill Posey (R-FL) and Congresswoman Jaime Herrera-Beutler (R-WA). Click here to watch!
The World Kidney Day Congressional Reception, with special guest Angelica Hale, was held in conjunction with the 5th Annual Kidney Patient Summit and as a kick-off to World Kidney Day. Held at the Reserve Officers Association’s Top of the Hill (One Constitution Ave., NE) from 6:00 pm to 7:30 pm, we honored congressional champions’ of efforts to promote early detection and treatment of chronic kidney disease. Click here to watch video of Angelica Hale singing at the reception!
Join us in congratulating Haley Newkirk, from Colorado, on winning this year’s Richard K. Salick Advocacy Award. This prestigious award is presented an individual who embodies the spirit of NKF’s dear friend, Rich Salick, a former pro surfer who underwent three kidney transplants, faced cancer, but still put the needs of other kidney patients ahead of his own.
Haley went on dialysis at 14 and is a transplant recipient. A leader among NKF’s Kidney Advocacy Committee, she is a tenacious advocate for kidney patients across the country working to educate lawmakers about kidney disease, legislative priorities, and to help empower fellow kidney patients to make a difference in their lives.