Use the hashtag #MyKidneysMyLife with all your social media activity during 2017 to help us build awareness around the hashtag, and track responses and outreach to government officials. Find your legislator’s social media account information here.
For some basic tips, watch Kidney Advocacy Committee (KAC) liaison Rahmeka Cox’s video:
The following are four actionable items we’ll be asking the lawmakers for. Use these message points in your social media activity.
Prohibit discrimination in the availability, coverage limit, or price of life, disability or long-term care insurance for living donors and add living donation to the Family and Medical Leave Act (FMLA).
Improve Chronic Kidney Disease (CKD) Care (H.R. 3867):
Accurate and timely diagnosis of chronic kidney disease saves lives and reduces healthcare costs. Serve as an original co-sponsor on imminent legislation that seeks to establish a pilot program to help improve care, and outcomes, for patients with CKD.
Increase Fiscal Year 2017 funding for the Center for Disease Control’s (CDC) Chronic Kidney Disease Program, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the Health Resources and Services Administration’s (HRSA) Division of Transplantation (DoT).
Medicare pays for the transplant and immunosuppressive drugs for 36 months post-transplant, but coverage of these critical medications stops unless the beneficiary is Medicare-aged or Medicare-disabled. As a result, they often face the challenge of finding affordable coverage that allows them to obtain medications required to maintain their new kidney.
1. Take a photo of yourself holding a sign that answers the following question: How did kidney disease affect/change your life? (Example: “I have been waiting 5 years for a lifesaving kidney transplant.”)
2. Tweet the photo at your legislator using the hashtag #MyKidneysMyLife and tie it to one of the below statistics:
Or use a state-specific state from the fact sheets on our web site:
3. Or use these the following additional tweets:
We encourage you to take videos with your smartphone when participating in district or advocacy events. Please load your videos on Youtube, share them with your legislators on social media and email a link of the video to Andrew.Fullerton@kidney.org.
Keep your message short and simple. Here are some sample questions and comments you can answer in your videos:
We encourage you to take photos with your smartphone when participating in district and advocacy events.
Keep your message short and simple. Some suggestions:
See #mykidneysmylife on Twitter to see what others have done!